Rare Disease Gateways

The links provided on this page are to websites that are gateways to a wide variety of scientific and medical information. The first of these websites ‘ORDR’ is specifically on rare disease research and may provide the best gateway for rare disease related information. The other gateways are more general, but do provide excellent links to an extensive array of information.

ORDR: Office of Rare Disease Research

Here you can find information on almost 7,000 rare diseases, including links to current research, publications from scientific and medical journals, completed research, ongoing studies, and patient support groups. The site is free access, user friendly, and their home page provides easy to follow links and more detailed descriptions.

The Office of Rare Disease Research is an American government office within the National Institutes of Health. Its role is to promote information, research and treatment for rare diseases and its site provides links to a wide range of good quality rare disease information resources. Go to ORDR.

HON: Health on the Net Foundation

HON created this site to guide non-medical users and medical practitioners to all useful and reliable online medical and health information. This includes both medical and support sites that are already in existence, along with their own online information. It is a user friendly site, with the ability to personalise its capabilities depending on whether you are a lay person or a medical professional. Access is free to all users.

HON, initiated in 1995, is a non-profit Swiss-based international organisation. In July 2002 it was granted official NGO special consultative status by the Economic and Social Council of the United Nations. Go to HON.

Karolinska Institutet

This site was designed to provide open access to resources on the internet, for the general public and health care professionals, as part of the Karolinska Institutet's mission to improve the health of mankind through research, education and information. You will find access to medical databases, educational resources, online medical libraries, patient support groups, and a wide range of resources encompassing diagnosis, treatment and health information.

Karolinska Institutet is based in Sweden and is one of Europe's largest and most acclaimed medical universities. Go to KI.